Vintage FM Radio Fact Sheet
“Caring for a Lifetime”
Factsheet for Carers of
Adults with Learning Disabilities
Caring for a Lifetime
All of us worry about the future of our relatives who have learning disability and who are dependent on our support.
This worry can be particularly acute as we get older. We wonder how they will cope if we are no longer around or if ill-health makes it difficult for us to care at the level we used to do.
This handout contains some key information and contacts to help you get started on planning for the future to give you and those you care for greater peace of mind.
Who to contact for help and support
Age UK Wirral
42-44 Market Street
Tel: 0151 666 2220
Age UK Advice line: 0800 169 6565
Learning Disability Helpline run by Mencap - it is a National Helpline
Tel: 0808 808 1111
Or write to:
Learning Disability Helpline
3rd Floor, Delta View
2309-2311 Coventry Road
Contact Wirral Social Care Services for Adults with Learning Disabilities
Contact the Central Advice & Duty Team for information about services or for help.
Tel: 0151 606 2006
For emergencies outside of normal office hours:
Tel: 0151 677 6557
You can also get advice about services through One Stop Shops face-to-face or through Information Points.
Respond Elders Project
Contact: Michelle Brooks
Address: 24 - 32 Stephenson Way
Telephone: 020 7380 8256
Respond is a specialist organisation working with people with learning disabilities, carers, families and professionals offering psychotherapy, training, advice, information and support on all aspects of trauma and abuse.
The Elders project at Respond works with all aspects of growing older with a learning
disability for both family carers and people with learning disabilities.
Information about personal budgets can be found on the
Wirral Borough Council website:
Or you can get information about how personal budgets can work from:
Tel: 01564 821 650
Circles of Support
Circles Network is a UK-wide voluntary organisation based in Warwickshire, renowned for building inclusive communities on the foundations of justice, advocacy, empowerment and friendships.
Working with people of any age who are isolated or at risk of isolation, this organisation has ground breaking expertise in the development of Circles of Support, Independent and Collective Advocacy, Person Centred Planning and Inclusion into the mainstream of life.
Tel: 01788 816 671
Resources to help you plan for the future
Foundation for People with Learning Disabilities (FPLD)
FPLD has a series of books and downloads from their website on a range of topics for older carers.
These include the Mutual Caring Project which has a multi-media resource - with documents that can be printed from the DVD.
They include a checklist for older carers to help plan for the future, including emergency planning, and their website also has a downloadable information sheet on Circles of Support
Or write to:
Foundation for People with Learning Disabilities
Sea Containers House
20 Upper Ground
London SE1 9QB
Tel: 020 7803 1100
Fax: 020 7803 1111
(Please note that they do not offer an advice service)
Housing Options is a housing advisory service for people with learning disabilities, their families and their supporters. They offer free advice to people with learning disabilities, their families and advocates on the Housing Options Helpline –
Tel: 0845 456 1497
The Benefit Enquiry Line
Tel: 0800 88 2200
Carers UK- campaigning organization for carers (has useful fact sheets)
Tel: 0808 808 7777
Community Legal Service Direct
Free, confidential legal advice for residents of England and Wales
Tel: 0845 345 4345
Advice on Wills and Discretionary Trusts:
The Law Society can provide information on solicitors and can answer general legal enquiries. They can also give you contact details for solicitors in your area.
Find a solicitor
(Search under areas of law classified as 'trust law' and 'wills and probate') at:
Mencap run seminars on Wills and Discretionary Trusts.
Tel: 020 7696 6925 for useful publications or to speak to their in-house solicitor. They can supply a list of solicitors in your area who are experts in this field.
They also hold events around the UK for families.
Your nearest local Mencap group is:
Contact: Mrs K Postles
Banking for People who lack Capacity
Copies of publications and leaflets can be obtained by completing the relevant order forms and returning them to:
British Bankers' Association
Pinners Hall, 105-108 Old Broad Street
Applying to become a Court Appointed Deputy to handle the affairs of someone who lacks capacity to make decisions
Court of Protection information has moved to the DirectGov site recently. You will find all the information there about becoming a Court Appointed Deputy if your son or daughter lacks capacity to make important financial, property or welfare decisions.
You can contact the Court of Protection at:
2 Junction Road
Tel: 0300 456 4600
Information about Brokerage
Good Practice in Support Planning and Brokerage (Department of Health)
Useful website for finding out more about support planning
Managing the Money for Personal Budgets
Information about how to make person-centred plans can be found here:
In the UK, please contact: firstname.lastname@example.org
Helen Sanderson Associates
34 Broomfield Road
Tel. 0161 442 8271
Message in a Bottle
“Message in a Bottle” is a scheme that is a simple way to ensure that emergency services can find out key medical and support information about you or your relative with a learning disability. This is designed so that if you were unable to communicate in a medical emergency they would know where to look for this vital information. A small plastic bottle contains 2 stickers with a green cross on them (like the ones that pharmacies have outside their shops) and a small sheet of yellow paper to provide any important medical and support information.
The first green sticker goes on the front door of your property and the other goes on the fridge door. You fill in the details on the slip of paper, pop it in the bottle and put it in the fridge. The emergency services are trained to look in the fridge for this information.
This scheme is supported by the Lions Club across the UK. Your local GP or Social Care Services should be able to give you a “Message in a Bottle” kit.
About Oxfordshire Family Support Network
We provide a local network of support run for family carers of people with learning disabilities of all ages, by family carers in the same situation.
Our mission is to support families of people with learning disabilities through information, advice and training and to ensure that their voices are heard by those who provide services.
Jan Sunman June 2011
Tel: 01865 369477